Last year I found out Machu Picchu is finally wheelchair accessible. The opportunity opened a couple months ago, so we took it. We cashed in our flight miles for Peru tickets and here we are. Climbing Machu is something I’ve always wanted to do since I first heard about it at 17.Read More
“We are the Zebras; the rare, complex, undiagnosed and multisystemic disease patients attempting to heal in a medical system designed to see only horses. Our stories often remain untold, neglected or invalidated in the current medical paradigm. But we have the power to touch hearts, open eyes and expand minds beyond reductionist diagnostic practices. By sharing our challenges and experiences, we help raise awareness of the need for compassionate, accessible care in complex medical cases.”
-Dana Anahalt, Zebra Tales
We have been led to believe it’s just one person or one party creating the demise of our country, it’s not. It’s systemic. The system is riddled with poison and both republicans and democrats have been putting that poison into their pockets for decades which results in our current system that deeply lacks morality, fairness and justice.Read More
Self-doubt is universal. The phantom of ourselves imposes the will of self-doubt and insecurity onto all of us. I experience self-doubt all the time as an artist, designer and a disabled person forced to prove their worth in an able-bodied world.Read More
For weeks I've had dozens and dozens of bug bites all over me from sleeping at night (Jason has zero) and during the day. I'm sitting here working while mosquitos and bugs are feeding off of my legs and feet and there is nothing I can do about it because I can't move my legs nor reach them.Read More
You don't realize how much you need your neck until you're forced to realize how much your neck does for you and what happens when it starts dying. I will push myself to draw until I absolutely cannot, but why must everything in life be so difficult? Why am I constantly saying goodbye?Read More
“A human body is a conversation going, both within the cells and between the cells, and they're telling each other to grow and to die; when you're sick, something's gone with that conversation.”
-W. Daniel HillisRead More
“Awareness is what happens when the body malfunctions.” Splitting oneself from the pain is a common psychological response to pain and trauma. An unconscious survival technique. Frida split herself through art.
“And Frida is the sole example in art history of someone who has torn open her breast and her heart in order to tell the biological truth of what she feels inside them.” -Diego RiveraRead More
For the last few years I have made it a birthday goal to try something new — particularly something I’m afraid of like heights. As a result I’ve had some amazing adventures like skydiving over Sonoma County and parasailing over Torrey Pines Pacific coast. But, as I’ve been sharing, I’ve been under a lot of physical and emotional stress…Read More
Today is international Rare Disease Day; a day to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients' lives.
A rare disease is any disorder that affects a small percentage of the population, therefore has not been adopted by the pharmaceutical industry because it provides little financial incentive for the private sector to make and market new medications to treat or prevent it. Basically, not profitable enough in a multi-billion dollar sect of high profit drugs.Read More
“I am fading away. Slowly but surely. Like the sailor who watches his home shore gradually disappear, I watch my past recede. My old life still burns within me, but more and more of it is reduced to the ashes of memory...Once, I was a master at recycling leftovers. Now I cultivate the art of simmering memories.” -Jean-Dominique Bauby, The Diving Bell and the ButterflyRead More
Ron Finley is a designer, artist and a self-taught gardener. But he’s so much more than these boxes. Finley, lovingly known as the “Gangsta Gardener”, is a community leader who has traveled around the world giving speeches; with a greater message of thinking bigger and freer.Read More