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KAM REDLAWSK

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www.bikeforkam.com is a grassroots project about a group of friends coming together to complete a coastal bike tour from San Francisco to Santa Monica (Los Angeles) on April 25 to April 29, 2011. The purpose of their journey is to raise funds and awareness for their friend Kam, and for all those afflicted with HIBM (Hereditary Inclusion Body Myopathy).

Bike for Kam Launch

April 1, 2011

We finally launched!! This will be a very brief post as I'm simply exhausted.  This week has been 24/7 bike project.  Built the website and my new friend, Steve...I don't even want to know how many hours...weeks...he spent on this video.  Do it justice and at least watch it as it is only 2 min and 30 sec.  If you want to know who steve is visit our website ;).

Emotionally and physically exhausting -- I was up nearly all night. Unintentionally. It just happened.  This stuff takes so much time. Plus, talking and writing about your ailing condition can be taxing. So, I need a break and hopefully you can help tired me out.  Poor steve was emailing me at 3am from Los Angeles :/.  

As soon as I hit the launch button and sent our PR outline out to the team I just cried. I was alone. I'm sure it comes in part, because I am deeply tired, but also because I feel so exposed. I should be an expert at this, right? After all I talk about it all the time but it is still hard.  And, I get fearful that my arms are going to weaken to nothing soon. I can feel it my fingers and shoulders. Sometimes, I'm scared.

I think I am going to take a break this weekend. I'm so tired.  It is my birthday this weekend and I am supposed to be going away to bask in a winery and then go skydiving,  but I don't feel mentally prepared for it all. What? Who knew you had to be mentally prepared for a vacation?  That's how mentally exhausted I am. I feel like, "Oh yea, I have to go skydiving this weekend".

Like it is an item on the list :/. Kinda wanted to enjoy the moment. Oh well, I am sure I will be fine once I get there.

I hope this project will go well and I really really encourage you, whoever you are, to stretch yourself and move this project around your circle. It's important. Alot of hard work and dedication has been wrapped up in this and it is just the beginning.  More work and more fun to come. 

I need your help!  This is a viral project and we will get absolutely no where if you don't chip in and/or share.  All it takes is your fingers tapping on that keyboard or bringing it up in a conversation with a friend or hey, even a stranger. Reach out to at least one person a day and forward them to us.

Have a good weekend all! I may just come back with a video of me skydiving :O.

What? How can you help you say?  Thanks for asking. Well first, visit our website at:  www.bikeforkam.com

and then....

1. Watch our promotional video, and then repost it

Remember, there is no such thing as reposting something too many times.  People get busy and they always mean to ‘get involved’, but life takes us away.  We read some where that the human attention span is 8 seconds and sustained attention is 15-20 minutes.  We forgot where we read that, though, because we were too busy doing something else.

2. Donate on our CROWDRISE site where our donation page is set up

All proceeds benefit HIBM medical research and goes directly to ARM (Advancement of Research for Myopathies), a credited 501(c)(3) Nonprofit  (EIN # 95-4837946)

* Please, pass it on to your international friends and family!  CROWDRISE accepts donations from everywhere.

3. The MOST important way to help is passing our site and project on to all your friends and family

This will be the key to success. SHARE . SHARE . SHARE until it hurts (Well, we don’t really want you to get hurt).

* Post it on Facebook

* Post it on Twitter

* Post it on your blog

* Ask your friends, or strangers, to post it on their blog or forums.

* Post it on Post-its…?

* Personally email your friends and family telling them why they should donate and encourage all of them to pass it along.  If you happen to know Kam  - share how you know her.

* Be Persistent

* Be Persistent (We said that one twice, because that one is important)

4.  Repeat steps above.

← The Next DayComing Soon: Bike for Kam →
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“Not an Ostrich “ photography exhibit at Annenberg Space for Photography with selections from Library of Congress. / “New Designs:Ingo Maurer Bulb” 1970
@librarycongress
@annenbergspace
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#libraryofcongress #photooftheday
“Not an Ostrich“ photography exhibit at Annenberg Space for Photography with selections from Library of Congress. @librarycongress @annenbergspace
“Not an Ostrich“ photography exhibit at Annenberg Space for Photography with selections from Library of Congress. @librarycongress @annenbergspace .
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#libraryofcongress #photooftheday #annenbergspace #NotanOstrich #wheelchairtravel
Silo sunset post rain. #flashbackfriday #wheelchairtravel #sunset
I’ve been laying here dealing with aftermath of an overly busy & labor intensive trip to my home state. When I get like this my whole body feels like a mass of bruises. I barely slept on the trip due to working on projects for family, visit
I’ve been laying here dealing with aftermath of an overly busy & labor intensive trip to my home state. When I get like this my whole body feels like a mass of bruises. I barely slept on the trip due to working on projects for family, visit
Lake Huron sun rising. “The darkness is at its deepest. 
Just before sunrise.” -Voltaire
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#wheelchairlife #wheelchairgirl #wheelchairtravel #accessibletravel #travelblogger #michigan #puremichigan #lakehuron #bebound
Saw 7 freighters in one sitting. .
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#wheelchairlife #wheelchairgirl #wheelchairtravel #accessibletravel #travelblogger #puremichigan #lakehuron  #travellikeagirl #girlswhowander #femaletravelbloggers #instagood #wheeliesaroundtheworld
Sitting on the dock of the lake.
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“When the mind is silent like a lake the lotus blossoms.” -Amit Ray #latergram #wheelchairtravel .
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#wheelchairlife #wheelchairgirl #accessibletravel #travelblogger #michigan #puremichigan #lakehuro
Another new one I did for my art show. This one was sold, no prints available. I imagine doing a series of this one as self-doubt is feeling we all journey through. This image comes very clearly to me when I’m dealing with my own self-doubt. .
Another new one I did for my art show. I like trying new styles.
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“Bottled Up” / “This one is about my muscle wasting disorder and the list of ambiguous chronic symptoms of pain, nerve pain and relentless itching. It’s the ph
It’s #VisibleWomen Day. I’m an LA based artist who documents her rare, debilitating  and degenerative muscle wasting disorder and its emotions through illustrations. This muscle disorder will eventually take my hands like it has my legs.

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