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KAM REDLAWSK

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ART GALLERY

Preorder Yumi and Monster here

Book Me As A Speaker!

Looking for an engaging, insightful, and inspiring speaker for your next professional event? With a focus on delivering well-researched, articulate, and impactful dialogue, I aim to engage audiences through meaningful connection. As a (disabled) author, artist, industrial designer, and advocate represented by Collective Speakers Agency, I bring real-world experience, powerful stories, and vulnerability to every stage. Whether it’s a keynote address, conference, panel, or workshop, I’ve spoken around the world and am passionate about connecting with audiences and delivering lasting impact on a variety of topics.

To inquire about availability, more information, and booking details, please contact me via the contact form.

  Represented by Collective Speakers Agency:    Kam Redlawsk is an award-winning disabled industrial designer, artist, author, consultant, speaker, and advocate.    As a Korean-Japanese American adoptee born in South Korea, raised in Michigan, and th

Represented by Collective Speakers Agency:

Kam Redlawsk is an award-winning disabled industrial designer, artist, author, consultant, speaker, and advocate.

As a Korean-Japanese American adoptee born in South Korea, raised in Michigan, and thriving in Los Angeles, California, Kam's life is a rich tapestry of experiences shaped by her progressive form of muscular dystrophy, with her creativity, voice, and resilience taking center stage.

Kam is also the debut author and illustrator of the children's picture book Yumi and Monster, inspired by her rare disease and disability.

As an advocate, Kam has been a voice for the rare disease and disabled community since 2006, using art, writing, travel, and creative tools to connect us as humans. Kam's creativity and advocacy are inspired by the human condition and its fragility. She believes that vulnerability is a strength, that humans have more in common than differences, and that creativity and storytelling are important for gaining perspective and creating bridges within humanity.

Whether Kam is speaking on design at Kyoto Design University, a keynote speaker for National Scholastic Awards, sharing her insights at MIT, or showcasing her art in Washington DC as a rare disease award recipient with congressional staff, Kam's varied interests and experiences equip her to speak on a wide array of topics.

As a daydreamer and chaser of inspiration, Kam dedicates her time to creative expression, exploring the human condition, advocating for others, and globetrotting the world in her wheelchair. She embodies a dynamic yet gentle force, bringing a balanced and empathetic voice to today's divided world. Kam is doing all of this, and she’s just begun.

 *The release date for Yumi and Monster is September 2, 2025. You can preorder your copy  HERE  or anywhere books are sold online.  Follow Kam’s wheelchair travel, mini-memoirs, art, and disability and accessibility musings on  Instagram at i nstagra

*The release date for Yumi and Monster is September 2, 2025. You can preorder your copy HERE or anywhere books are sold online.

Follow Kam’s wheelchair travel, mini-memoirs, art, and disability and accessibility musings on Instagram at instagram.com/kamredlawsk.

Follow Me on Instagram

On Instagram, is where I share all my wheelchair travels around the world, art, writing and mini memoir musings, and disability advocacy.

Above all, I’m an advocate first. I’ve been an advocate since 2006. I am interested in many things so you will find a range of interests and topics on my pages from children’s contributions, a picture book, art and animation consultancy, to open conversations and musings of the real life adult experiences we face as we grow from children to adult. I wrote and illustrated a children’s book that releases September 2, 2025, Yumi and Monster, but this doesn’t limit who I am nor my advocacy range, art or commentary to all things kids. This variation of facets and nuances I choose to publicly share is in fact a representation of how humans truly are. We can be many things at once.

Follow my wheelchair travel adventures around the world, art, mini-memoirs, and disability and accessibility musings on Instagram at @instagram.com/kamredlawsk

Facebook: https://facebook.com/kamredlawsk

LA TIMES FEATURE

My story on the cover of LA Times | 2017

http://www.latimes.com/projects/la-me-kam-redlawsk/

Born in South Korea and raised in Michigan, Kam Redlawsk has had a diverse life. She currently resides in California and is a thriving industrial designer, artist, advocate, traveler, writer, and speaker. Additionally, she is a Korean + Japanese American adoptee. Kam has been an advocate for the rare disease and disability community since 2007. She uses art, writing, travels, and tools that connect us as humans to achieve this.

Los Angeles-based self-taught illustrator and writer, Kam Redlawsk, captures fleeting moments from her life, particularly her thoughts on living with a rare and degenerative muscle-wasting disorder called GNE Myopathy. This condition has gradually progressed, leading to complete immobility. Symptoms first manifested when she was 15 years old, and she has been grappling with this progressive condition for the past 23 years.

Follow my book’s progress, art, wheelchair travel adventures, mini-memoirs, and disability and accessibility musings on Instagram at @instagram.com/kamredlawsk

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PRINT SHOP

Purchase my art prints through an all female art collective Parker Gillingham

Preorder picture book Yumi and Monster, Releases September 2, 2025.

Follow my book’s updates, art, wheelchair travel adventures, mini-memoirs, and disability and accessibility musings on Instagram at @ instagram.com/kamredlawsk

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Monster and Me Picturebook

2019

In 2019, I embarked on an exciting journey by working on my first children’s picture book. The inspiration for this project came from a drawing I had created in 2012. After a fall, I  imagined this scene. At that time, I was using a cane and leg braces to assist me with mobility.

As I lay there, post-fall, I personified that moment, and my disease transformed into a forlorn monster; the unwitting soul, the origin of all my falls and struggles. This monster is the GNE Myopathy (also known as HIBM), which has become a part of me. It’s a part I don’t want, didn’t invite, nor did I create, but nevertheless it’s still a part of me.

How do you deal with something that keeps following you uninvited?

Monster serves as a constant reminder of my past, present, and future.

My monster lurks and hides, yet I can sense his presence. Like an innocent child, he possesses genuine emotions, a sense of purpose, and an attachment to me. My apathy for him saddens him, causing him to grieve and contemplate my constant desire to escape him. He is unaware of the reasons behind his actions, only that he must be with me. After all, following me is his purpose.

This is an aspect of myself that I have no control over. It’s a complex part of me that creates shaded gray areas of emotions. I can’t be entirely angry about something that has brought about such a profound perspective and imagination, but perspective can sometimes be painful.

Here we are, in a relationship. It’s a story about a journey from struggle to acceptance. Our lives have intertwined, and if we’re to survive, we must find acceptance.

Preorder this picture book story, Yumi and Monster, today!

Follow my book’s progress, art, wheelchair travel adventures, mini-memoirs, and disability and accessibility musings on Instagram at @instagram.com/kamredlawsk

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Painstaking

2019 / When I’m grappling with chronic pain, I visualize it as a blanket enveloping my entire body. This visualization extends to the profound sense of loss I feel for my body, which is gradually being eroded by my relentless muscle-wasting disorder.

Physical and emotional pain can strike anyone at any time. This is how it feels. In these moments, all that remains is to find beauty—anywhere. Somewhere.

Looking to the light is difficult and requires great mental focus, but it’s necessary in order to continue the tether that connects me to this world.

In difficult times, looking to the light can be a challenging endeavor but an essential act that sustains the tether that connects me to this world.

This time I gave a nod to my Korean heritage. The cloak of physical or emotional pain is a loose interpretation of a “hanbok”, a traditional Korean dress. Korea’s national flower is Hibiscus Syriacus or “Rose of Sharon”. The smaller flower graphics are the exact design from my childhood Korean passport when I flew to America at four years old to meet my first family.

This time, I honored my Korean heritage. The cloak of physical or emotional pain loosely resembles a “hanbok,” a traditional Korean dress. Korea’s national flower is Hibiscus Syriacus, also known as the “Rose of Sharon.” The smaller flower graphics are precisely the same design as my childhood Korean passport. I had flown to America at the tender age of four to meet my family, and this was my Korean passport to come to America.

Wear your pain when it’s necessary, but never forget to keep searching. Keep going. 

Follow Kam’s wheelchair travel, mini-memoirs, art, and disability and accessibility musings on Instagram at instagram.com/kamredlawsk.

SOUL TOURIST

Infinite Seeker

KoreAm Column / November 11, 2013

While looking at the Detroit skyline from my tiny studio apartment, I made the impetuous decision to visit Korea. This would be my first time back in 20 years, since my adoption at age 4 by a white family in Michigan. It was the summer of 2003, and I booked my ticket two weeks before departure. This was also the period when the mysterious weakening of my legs had begun (the first signs of my genetic neuromuscular disorder that made me a full-time wheelchair user), and this hastened my sense of urgency, despite feeling nervous about traveling alone.

Fortunately, once I got to Korea, I wouldn’t be alone. A group of devoted classmates from my design college, which had a large number of international students from Korea, had offered to host me that summer and show me around my lost country. Back in college, I began inadvertently making friends who looked like me, and consequently tossed into “Korean life.” As someone who grew up in a predominantly white community, including my own parents and siblings, this sudden surge of similarity made me curious, and I jumped in with both feet—from learning all about Korean cuisine to Korean dramas and even going as far as teaching myself Hangul (the Korean alphabet), just so that I could read and memorize popular Korean songs to surprise my friends during karaoke outings.

I went from having all white childhood friends to mostly Korean friends, and thus began my education about my heritage, of which I knew nothing about. Or so I thought. As the plane touched down at Incheon Airport, I felt excitement. And as soon as my wobbly feet touched Korean soil, I felt at home.

For the next couple of weeks, my friends took turns showing me around. I met their families and lived as they did. Their families were nurturing hosts, treating me to home-cooked traditional Korean food. As we sat on the floor indulging in the colorful array of stews, meat and banchan (side dishes), I felt kinship and comfort. All of this seemed remarkably familiar, and I realized my memory had escaped me for so many years.

I found myself intently observing the children playing in the streets, as if watching them would extract a sense of what I was like as a child in Korea. But with all the positive moments, I also experienced moments of disconnect. Natives would target me as either not a true Korean or a disgrace because I didn’t speak their language. They could not understand why I didn’t, nor did they care, and would look upon me with pity as they glared down at my cane. When we drove through the bustling Seoul through pouring rain, all I could see were a sea of umbrellas covering the city. At one moment, I remember all the heads lifting up, and I could see a sea of faces that looked like me.

When it was time to leave, I felt sad, as I gazed at my birth country from the airport conveyor belt. Leaving Korea was difficult, and suddenly, Michigan no longer felt like home. I cried.

* * *

The story I know, or remember, of how I came to be begins at age 4. Belonging to a family was not a given for me. It required a long journey across the Pacific Ocean to find them. I am told I was abandoned at birth and my biological mother left, giving no name or trace of who she was. Sporadically, I would think of this alleged moment. I felt like she was a phantom in the delivery room. Was she really there? Did such a person exist?

I was transported from that little birthing clinic in Daegu, South Korea, to a convent. My first week in this world was spent with nuns and other abandoned children. Then I moved to an orphanage where I lived until being adopted by an average-income white couple in their late 30s, who already had three “homemade” sons at home in Michigan.

My very first photograph in the States shows me being greeted by my (adoptive) parents, Sandra and Rodney, at the airport, a picture that is always pinned up on the wall of my home. My mother recalls the story of seeing me being carried from the terminal with my tongue sticking out at everyone. “Oh, boy,” she thought, “this is going to be a ride.” They took me home to meet my three brothers, and I was now theirs.

The combination of newly nervous adoptive parents and the confusion of a little girl who did not know what family meant led to a rocky beginning, and I’m told I tested my parents to the limit. I’m sure they had their own jitters. I was not only adopted, but foreign. I brought my language with me, so communication was initially a challenge and would require my mom “bawking” like a chicken in order to relay the message that chicken was for dinner. For the first couple months, I whimpered for my “eomma” (Korean for “mom”), while crying myself to sleep. When I was 5 years old, I had a friend named Meena, who was also a Korean adoptee. She was the only friend that looked like me. One day I stopped seeing her around, so I asked my mom what happened to her. “She was sent back,” she said. I wondered if I would be sent back, as well. I knew there were problems, and sensing my parents’ anxiety and unstable relationship, I knew I was not the perfect child and further stressed an already crumbling marriage. From a young age, I knew what uncertainty and temporary meant. Nothing was forever in my tiny world.

I grew out of the mischievous child to an overly responsible and studious kid. Like everyone, my family had its own turmoil and issues, but I knew that they loved my brothers and me, and gave it their best. My life would become typically suburban. I played sports from childhood through high school and romped around with my three brothers, playing army, neighborhood flashlight tag and video games. I don’t recall feeling too different from others or my siblings.

Soon, I became one of them. Soon, I no longer saw a difference between them and me, and it was my families’ faces and bodies that I detected in my reflection. There must have been a moment I forgot who I was, where I came from, and shifted into the new me. My new surroundings now defined me, and I assimilated in order to survive and thrive.

It wasn’t until sixth grade and through junior year that I would be made aware of how different I really was. Like most children enduring their puberty years, I came under the gaze of critical peers who often made their chinky eyes at me. They capitalized on anything different about me. I was born with a cleft palate, so they would make fun of my voice. To this day, I hate how I sound. The first three months of life, I was told that I was in the hospital due to my cleft palate, chicken pox and measles that left scars on my face, so my classmates called me “crater face.”

As I got older and looked in the mirror, I began realizing how different I was from my white peers and family members. I felt ugly and would feel that way for most of my life. I wanted to be like everyone else, but was picked on for much of junior high. I grew quiet and reserved. I lived inside myself, even at home. I would sometimes spend my lunches in bathroom stalls or in the library. I still had friends, was heavily involved with school activities and made all A’s, but never felt truly connected to any category or group.

It wasn’t until college, when I was exposed to a whole new world, and the thrill of education enveloped me with new thoughts and ideas, that I realized those junior and high school years were so limited and meaningless. It was significant that I had moved away from my family and started forming my own self, diversifying my circle and experiences. I now owned the freedom to explore a self I did not know. I experienced my Korean period. I visited Korea, had Korean friends and became familiar with what my past could have looked like. But after graduating from college and living and working in the “real world” for several years, perhaps not unlike many second-generation Korean Americans, my Korean identity became less central to who I was.

I ended up unintentionally marrying a Korean adoptee, a former college classmate. He is very much like myself—not really Korean, not really Caucasian, just his individual self. We are both well-adjusted about being orphans and adoptees, with the opinion that it does not define who we are.

In 2010, I took my husband to Korea. It was his first time back. We ended up tracing my steps from birth to my orphanage, and I had the great and unexpected honor of meeting my foster mother who remembered me intimately. Though decades had passed, she lovingly recalled memories of what I was like as a child.

I saw my very first baby picture in the courtyard of the convent and was able to play with newly placed orphans in the orphanage where I once played. It was a wonderful experience, but somehow felt different than my 2003 visit. I felt like a tourist this time. I had grown past my Korean phase. I was still proud to be Korean, but felt odd to be completely surrounded by people who looked like me.

* * *

I like who I am, a hodgepodge of experiences I’ve collected along the way. I am not just American, Korean, disabled, an artist. I crave experiences and views that are truly different than my own. That is who I am. My background as someone who never quite fit in, I suspect, helped inform this perspective.

Of course, I still wonder about my past and have become increasingly interested in my biological family. I do not fantasize about my birth family and how my life could have been (better), but I do wonder about my biological mother’s story, her life and what events caused me to come about. Since childhood, I have had recurring dreams of this past. I wondered if she held me before she left and the thoughts that surged through her mind. I wonder about the story of her life.

My wrinkled tissue paper adoption records are all I have as proof that I was once a little girl in Korea. That I was once Kim Young-eun (Korean name given to me at birth) who loved dancing and singing “Goyohan Bam, Gorughan Bam” (Silent Night, Holy Night), hated naps, looked forward to the occasional cookie and TV time, and loved to be loved, even if I only allowed it at arm’s length.

I know many fellow adoptees who have struggled with identity or came from bad households, living a life of turmoil, loss, unrest, heartache, resentment and anger. Many have been left in the dark, lied to about their pasts or were victims of the system. I can’t speak for these adoptees because each experience is unique, but there is a common thread of something missing, a loss, this question of identity.

But, there is an identity seeker in all of us, orphan or not, and it is a journey that is never concluded. I think many of us search for the past to seek our future. I allow my past to be a part of who I am, without letting it dictate my present or future. I live with the philosophy of not allowing it to be a stumbling block.

To me, identity is like a Katamari ball that constantly rolls, absorbing every experience. No one experience is inferior to the other, and it is a constant adventure.

Epilogue: In 2007, I had DNA sequencing done and was given a definitive diagnosis of GNE Myopathy (back then called, Hereditary Inclusion Body Myopathy, HIBM), a very rare genetic, debilitating, degenerative muscle-wasting disorder. This diagnosis put an end to nine years of searching for what was causing my weakening body. Unexpectedly, it also acted as a biological microscope to a past I never met. My disease is genetic, and the mutated gene combination of my biological parents had been passed on to me.

I have had this disease since birth, but, unknown to science, the disease doesn’t begin to express itself until one’s early 20s. Despite never meeting my biological parents or knowing my history, a glimpse had now been given to me. My parents had become more tangible. They were written in my cells, and are having a profound influence on my life and my future. They are like shadows on the wall. And, in a way, this knowledge of my biological parents being carriers of this mutated gene that did not carry physical manifestations for them as it did for me brought about a great sense of humility, as well as a deeper connection to and interest in who they are.

Follow Kam’s wheelchair travel, mini-memoirs, art, and disability and accessibility musings on Instagram at instagram.com/kamredlawsk.

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Zebra Tales

2019

We are the Zebras; the rare, complex, undiagnosed and multi-systemic disease patients attempting to heal in a medical system designed to see only horses. Our stories often remain untold, neglected or invalidated in the current medical paradigm. But we have the power to touch hearts, open eyes and expand minds beyond reductionist diagnostic practices. By sharing our challenges and experiences, we help raise awareness of the need for compassionate, accessible care in complex medical cases.

— Dana Anahalt (She Walks Softly…a friend of mine…rest in peace)

Read the story that inspired this piece here

Follow Kam’s wheelchair travel, mini-memoirs, art, and disability and accessibility musings on Instagram at instagram.com/kamredlawsk.

Power to the Patients! Demand Hospital Prices

2021

Power to the Patients 2021 Submission: Zebra Tales

I am honored to have received the “Christina Sanchez Root Power and Grace Award” from Power to the Patient’s national art call campaign for my “Zebra Tales” poster!

Power to the Patients launched this art campaign to raise awareness that prices are now a patient's right, because as of the beginning of this year, every U.S. hospital is legally required to post all their prices publicly under the “Hospital Price Transparency Rule”. Unfortunately, over 90% of hospitals are not abiding by this law, so Power to the Patients launched this PSA campaign during the Oscars to raise awareness and enlist public pressure.

As a disabled individual who has been disabled in the medical paradigm for over half my life (25 years), I understand more than anyone the importance of access to an affordable healthcare system. No one should be suffering, sick, or dying while struggling to financially save their own lives because of a system that price gouges the most vulnerable.

Thank you to the esteemed jury who selected my piece: Obey Giant, Jerry Saltz, Susan Sarandon, Beyond Street Art, Valerie June, Chuck D (Public Enemy)

The namesake of this award is after Raleigh’s patient advocate Christina Sanchez (and Power to Patients first ambassador) who unfortunately died over the summer after a long battle with breast cancer.

“This award is to recognize the top art submission by an artist who understands the patient's plight and who also embodies the same Power and Grace strength (through the art and personally) as Christina exemplified.”

I'm told Christina was vibrant and strong, and I’m honored to receive this award. Selected works for this #callforart campaign will be in a NYC exhibition along with media awareness, so stay tuned. #kamdraws #kamswheelstravel #powertothepatients

Follow Kam’s wheelchair travel, mini-memoirs, art, and disability and accessibility musings on Instagram at instagram.com/kamredlawsk.

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Bottled Up

2018

This one is about my muscle-wasting disorder and the list of ambiguous chronic symptoms of pain, nerve pain, and relentless itching. It’s the physical and emotional repercussions of feeling trapped and limited as I’m caught in the center of turbulence. This also signifies what happens when we are emotionally bottled up – keeping ourselves inside in fear of vulnerability.

Follow Kam’s wheelchair travel, mini-memoirs, art, and disability and accessibility musings on Instagram at instagram.com/kamredlawsk.

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Cellular

2019

A human body is a conversation going, both within the cells and between the cells, and they're telling each other to grow and to die; when you're sick, something's gone with that conversation.

-W. Daniel Hillis

Inspired by a microscopic view of white blood cells, nerve bundles, and chronic illness.

Follow Kam’s wheelchair travel, mini-memoirs, art, and disability and accessibility musings on Instagram at instagram.com/kamredlawsk.

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Holding On

2019

When find ourselves in moments of profound struggle, blinded by our past, present, and future. We are unable to see the truth about our lives and ourselves, barely holding on.

Follow Kam’s wheelchair travel, mini-memoirs, art, and disability and accessibility musings on Instagram at instagram.com/kamredlawsk.

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HAREGUITAR

May 29, 2012

Bike for Kam was a grassroots cross-country bike tour I created and ran in 2011. It was meant to raise funds for medical research and awareness for my ultra rare condition: GNEM (aka HIBM).

Friends, old and new, biked from San Francisco to Los Angeles using Pacific Coast Highway and ocean wind to guide them. For four of those years, sadly, I wasn't able to join my friends. I would be at home while they were on the road for a multi-detour, while I managed the campaign, fundraising, and storytelling of their adventures. In a sense, I joined this annual 500-mile adventure in spirit by daily blogging their stories from my San Francisco home. This way I and all of our supporters and followers could be - in a sense - on the road with them.

In Hareguitar, I am the girl playing the guitar while re-telling the stories of my biking friends. Hareguitar represents imagination, storytelling, vagabondism, and the characters we meet along the road of life.

In 2016, my friends built me a rig, hooked it up to their bikes, and pedaled me from San Francisco to Los Angeles. For memory’s sake, at the end of the project, I would edit a compilation out of the media they took on the road. My little grassroots fundraiser that had no support or funding, using only Facebook, raised over $140,000 for GNEM (formally HIBM) medical research.

Officially, Bike for Kam concluded in 2016, but the stories it inspired will forever remain etched in our hearts.

Watch and read Bike for Kam’s daily bike diary and video compilations here.

Follow Kam’s wheelchair travel, mini-memoirs, art, and disability and accessibility musings on Instagram at instagram.com/kamredlawsk.

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Monster and Me Campfire Christmas

2019

Campfire Christmas with Yumi and Monster. My children’s book, on the other hand, is inspired by my rare disease. In the book, I portray myself as the little girl, and my disease is personified as the monster. The monster’s sole purpose is to follow me, and together, we embark on a journey through the struggles and acceptance of living with this condition.

*The release date for Yumi and Monster is September 2, 2025. You can preorder your copy HERE or anywhere books are sold online.

Follow Kam’s wheelchair travel, mini-memoirs, art, and disability and accessibility musings on Instagram at instagram.com/kamredlawsk.

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Chair Devils!

2019

My husband and I began a creative side project called ‘Chair Devils’. A year ago, we started drawing  Chair Devils (aka Daredevils),in our bedroom. A few months back, we decided to share our creations with the world by posting them publicly on Instagram.

As artists and designers, we are passionate about toys, art, animation, film, and pop culture. We believe in the inclusivity, emphasizing the need for greater disability representation in popular culture. Our community faces discrimination and exclusion from various media platforms, including children’s books and films. Despite this, the disability community stands as the largest and fastest-growing minority group in America and globally.

Using our background in design and toy design (I used to be a toy designer), we aim to represent the disability community we know in a lighthearted, fun, and inclusive way through adventurous chibi-inspired characters who pursue their dreams to the fullest. We believe increased visibility will foster greater understanding for a community that is often faced with misconceptions and exclusion.

Follow Kam’s wheelchair travel, mini-memoirs, art, and disability and accessibility musings on Instagram at instagram.com/kamredlawsk.

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I DON'T WANT to be an INSPIRATION

2012

Being an advocate for my condition and public about it makes me feel this way most of the time.

I frequently hear people say, “You’re an inspiration.” I understand the sentiment, and I often say the same to others. However, the truth is, I don’t genuinely want to be an inspiration. Sometimes, this comment makes me feel like a fraud, as if I’m standing on a pedestal under false pretenses because I’m not comfortable with the idea of being an inspiration. The “inspiration” in question simply wants to be ordinary, preferably unknown. 

Follow Kam’s wheelchair travel, mini-memoirs, art, and disability and accessibility musings on Instagram at instagram.com/kamredlawsk.

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KIMCHI NOSTALGIA

KoreAm Column / November 22, 2014

I think every one of us can immediately list foods that remind us of our childhood, the foods that give us comfort and feel like home. But how about foods that revive a childhood that we can’t seem to remember? When I boarded the plane to my new American life, in 1983, I not only left my foster mother, my orphanage and all that I knew for four years, but my home country and its culture.

Growing up in the suburbs of Michigan, with very Caucasian surroundings, I underwent the process that any foreigner goes through to assimilate and survive in her new life. I began learning my new family’s culture, and soon enough the memories of my birth country began to dissolve. I began to forget that I was Korean and had come from very different beginnings. It was almost like I folded the memories neatly and tucked them in a back drawer, opening them only now and then.

One summer when I was 12 years old, my family took a summer road trip to Kentucky to meet my father’s friend, whom he had served alongside in Desert Storm. His wife, Suk, happened to be South Korean, and they had two sons. We spent a week with their family, and I always remember the trip very fondly. One day, Suk took my mother and me to a commissary that happened to sell some Korean foods, such as ramen and kimchi. I was flabbergasted to see all the different kinds of spicy ramens in the aisle. Up until then I thought ramen only came in chicken flavor.

When we arrived back at her house with a bag full of groceries, Suk seemed excited to introduce me to some humble Korean treats. I remember standing on her linoleum kitchen floor as she reached into the fridge and took out a gigantic jar of what looked like brains to me. She told me it was spicy cabbage, a staple of Korean cuisine. “Wow,” I thought, “it looks gross.”

Suk set up a traditional, low Korean table on the floor and cooked up a very simple ramen dish with an egg, a bowl of steamed rice, some seaweed wraps and the kimchi. I felt new to the experience, but excited. I could tell Suk was excited, too, to share some of the foods that I seemed to have forgotten. As I took in a waft of the kimchi, it smelled garlicky and a bit rancid. I took a bite, and it was crunchy, yet soft in texture. Despite how smelly it was, I was in love with kimchi from the first bite. I remember eating some rice with the kimchi, and even the rice was different than what I had throughout my American life. It was stickier. I sat at the Korean table scarfing down the Korean edibles, and somehow I felt connected to a part of my old self. And, it felt familiar. Kimchi felt familiar.

The experience made me realize that our sense of smell and taste are extremely potent. Perhaps the olfactory and gustatory memory is even more reliable than our other memories because the latter often gets distorted by its owners. But our smell- and taste-based memories seem more pure, reminding us of something good or even something bad.

We all have these stories, stories of the foods that instantly give us that feeling of “home.” For me, this bowl of kimchi triggered some internal whisper that brought me back to my earliest, yet seemingly forgotten days. “Ahhh, I remember you,” the voice said. “Where have you been?”

Follow Kam’s wheelchair travel, mini-memoirs, art, and disability and accessibility musings on Instagram at instagram.com/kamredlawsk.

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Baby Mine

KoreAm Journal / June 25, 2015

As young as age 8, I was envisioning my future child—namely, a daughter. I remember having such love for her and a strong curiosity about her.

It wasn’t the typical stuff like, “What is she going to be when she grows up?” but, “Who is she going to be?” I’d have visions of a happy, vivacious, independent, strong, curious, sassy and loving person—all the characteristics I admired in female figures I read about as a kid.

Despite this abstract, if constant, love I had for a child I never met, I was not in a rush to get married and have children as I grew older. My goal was to put myself through school, travel, build a career and gain a sense of who I was before bringing a child into the world. I just hadn’t realized having children would no longer be an option for me.

Since I was 20, I’ve lived with an extremely rare genetic condition that slowly takes away the use of my muscles. At this stage, I am in a wheelchair full-time: I can no longer walk or stand due to progressive loss of my upper body muscles, including my hands, arms, shoulders, fingers and neck. To physically carry and give birth to a child today would destroy my body and most likely advance my weakness more quickly. While there is the option of surrogacy, it is expensive, not to mention financially unrealistic for my husband Jason and I to be assisted by a full-time nanny and caretaker. Adoption or fostering is a possibility down the road, which would make beautiful sense since we are both adoptees, but it greatly depends on our own stability, the progression of my condition and whether or not it’s realistic to care for a child without any kind of local or familial support.

No matter how positively I spin my condition, it is a lifelong roadblock that has eliminated or greatly limited so many of my original life plans. I feel as if my disability stifles who I really want to be and sometimes even my best efforts to live adventurously.

As a 36-year-old woman, I won’t lie and say wasn’t difficult to make this decision. It breaks my heart because it’s another example of a choice taken away from me—only this one hurts more than I could ever explain or describe.

There is a bright spot: In the past year and a half, I have become an aunt, and many of my friends are in the stages of having their first child or adding more. On Facebook, I see a constant stream of adorable baby pictures and milestones. But I feel an odd mix of emotions because, on one hand, I’m joyful for the creation of such a precious life—it’s a reminder of how sweet life can truly be. On the other hand, I, too, want to experience that moment of taking care of my child and looking into her eyes as she looks back at me. I’ve dreamed of that nearly my whole life.

As Korean adoptees, both my husband and I hoped to see our faces in our future children, to continue the connection from our unknown pasts into the future. I know that’s no longer possible.

Initially, I wondered if this was a subject I should write about—primarily because this is such a personal topic for me. But ultimately I decided to share my thoughts because I felt this is a real and painful struggle for many women—especially for those fighting in the trenches of infertility.

Meanwhile, as my niece and nephew (1-and-a-half years old and 10 months, respectively) are crawling, taking their first steps and learning to feed themselves, I am traveling in the opposite direction. (I often describe this progression as turning elderly and infantile at the same time.) But with the limitation of choice also comes the choice to proceed with grace—and understanding that sometimes we don’t get the things we want most out of life. I have a choice to do my best to reconcile these limitations without letting them destroy me.

We all have the choice to seek a different path—and that’s something that can’t be taken away from me.

Follow Kam’s wheelchair travel, mini-memoirs, art, and disability and accessibility musings on Instagram at instagram.com/kamredlawsk.

Animation: Eben McCue

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OVERCOME

KoreAm Column / August 27, 2015

“Ultimately we know deeply that the other side of fear is freedom.” – Marilyn Ferguson

I was fine on the drive up and felt mostly OK as I filled out the paperwork and zipped up my skydiving jumpsuit. This was it; there was no turning back. As my husband and the tandem instructor lifted my nearly limp body from the wheelchair onto the plane, I felt a sudden surge of doubt. What am I doing?

The aircraft took off. It felt like the longest plane ride ever as we cruised to a 15,000-foot altitude above beautiful Sonoma County. The cabin was silent. I sat there petrified. I talked to myself, told myself everything would be OK, willed myself to stop thinking about the incredible knot twisting around in my insides. I began to silently cry, not out of fear of jumping out of a plane, but in reflection—over what was happening in my life and what was yet to come.

If I can handle HIBM,* then I can handle jumping out of a plane, I thought. I can deal with my colossal fear of heights.

From a young age, I recognized there were two kinds of people: those who had no fears or at least lived in spite of them, and those who lived fearfully, who never tried anything and lived by a set of rules that kept them safe and comfortable. When I was young, I abided by such a set of rules, but deep down, I couldn’t wait until I was old enough so I could break every single one of them—starting with traveling the world. I could sense the regret others felt for not pushing themselves to live, a decision that resulted in a stunted spirit. THAT was my absolute biggest fear—of succumbing to fear.

Then HIBM came along when I was 20 and changed my whole world. Life felt both surreal and confusing. I was never one to fear death (except a painful one), but I never imagined becoming disabled—that was something that could happen to others but never to me, I thought.

When I went skydiving for the first time in 2011, my wheelchair had become a regular part of my life. I was using one during long-distance excursions and road trips, or even for getting around in shopping malls and art galleries. I had always been an avid traveler, but the reality of losing more and more muscle mass made my future a little murkier. As I sat there on the plane, about to jump out into the expanse below, I realized I could give up on the rest of my dreams by succumbing to fear, or face the challenge head on.

I chose the latter.

Life feels short and nothing has made me more aware of that than my chronic condition. In a way, my condition has been a blessing, by forcing me to become more adventurous. In the last 12 years, I have traveled to Japan, Korea, Thailand, England, Australia and France, and have taken road trips around much of California and adjoining states. I have gone adaptive skydiving, parasailing, skiing and dived in the Great Barrier Reef. And I’m not done.

I can’t change the cards I have been dealt, but I can choose how I want to play them. Fear steals from us and is all-consuming. So I choose to seek out freedom in the areas I can control: by having an open mind, accepting those who are different, having a sense of humor and, my favorite, keeping up my curiosity. And for that, I am extremely grateful.

*HIBM has been renamed GNE Myopathy. GNE Myopathy is a very rare and genetic muscle deterioration disease leading most to complete immobility.

This particular year I decided to try something new every single birthday, and it’s been a tradition since.

Follow Kam’s wheelchair travel, mini-memoirs, art, and disability and accessibility musings on Instagram at instagram.com/kamredlawsk.

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IT'll be ALRIGHT

2011

Living Against Fear / KoreAm Column / September 5, 2013

Parents always say things like, “You’re one in a million!” In fact, I literally am. My name is Kam, and a warm welcome to all of you to my very first column! I am your quintessential Korean American. OK, that was a lie. Not quite. I was adopted from Korea, and my parents are a white couple from Michigan. Already having three homemade white sons, they thought that a little girl could perhaps whip those boys into shape and decided to adopt me. I was the Korean import. I came to America at age 4, and this was really the beginning point of what my memory would locate as the start of my life.

I grew up in the white suburbs of Midwest Michigan, and it wasn’t until age 12 that I realized I wasn’t white like my family or those around me. I mostly saw myself as just Kam, but the combination of staring back at the mirror and teasing from schoolmates, who liked to point out my differences, soon made me see how different I really was.

But the reason I am one in a million, give or take, is that I have been graced with an extremely rare disease called Hereditary Inclusion Body Myopathy (HIBM), which statistically touches about one in a million worldwide. Though it is a genetic disease, I did not meet HIBM until my early 20s, during what’s supposed to be the most productive time of a person’s life. Prior, I was running, playing sports, active and healthy. HIBM is a progressive and debilitating muscle-wasting disorder, and although progression is slow, it typically leads to complete and total disability.

So what do you do with news like this? Not to worry. I live anything but a disabled life. Having studied automotive and product design, I am an artist and illustrator, a traveler, a wanderer. I have skydived and swam in the Great Barrier Reef. This doesn’t mean I am not disabled because I very much am limited, and that will probably become more apparent as my column rolls on.

But I choose to live life against my fears and will try anything at least once. Because of my disease, I’m also an advocate, and some of you may recognize my name from previous stories KoreAm has done about my efforts to raise awareness about HIBM and money to fund the cure, which is actually within reach. As part of my advocacy work, I became an amateur blogger to share the story of my HIBM, but prior, I probably would not have considered myself a writer.

I tend to follow the lines of Twain’s “Write what you know.” And what you will find in my column is an array of stories about my life that will hopefully resonate with many of you—the things that sometimes hurt us, challenge us, frighten us, make us laugh, make us brave or weak and make us cry. Each of my columns will also feature one of my illustrations, which are another way I can share my experiences. The illustration running with this month’s column was drawn two years go. At the time, I could literally feel my steps slipping away from me, as I was fitted for my first wheelchair. I was saddened. This was a significant milestone—one that I had done my best to avoid, hoping I would make it to clinical trials and bypass the chair completely. If HIBM was like a tree, this is how it spreads, with a ball of yarn clinging to me, drawing me in closer and closer. But I titled the illustration, “It’ll Be Alright,” because this is what I tell myself as I push through the increasingly difficult stages of this condition.

Follow Kam’s wheelchair travel, mini-memoirs, art, and disability and accessibility musings on Instagram at instagram.com/kamredlawsk.

Animation: Eben McCue

PLEASE DON'T LEAVE ME

2012

This piece represents the degradation of my upper extremities. One day I looked down at my hands and realized they began mirroring other GNEM (formerly known as HIBM) patients whose hands and fingers have progressed into languid fixtures. What has happened to my legs is now happening to my arms, fingers, hands, shoulders, and neck. It's been difficult to experience.

Losing my legs has been one thing, but losing my arms, hands, and fingers is an entirely different experience. With each level of progression, I'm reminded of the depth and severity of this condition. Pieces of me are disappearing like sand in the wind, and time continues to haunt me.

Follow Kam’s wheelchair travel, mini-memoirs, art, and disability and accessibility musings on Instagram at instagram.com/kamredlawsk.

Animation: Eben McCue

KamRedlawsk_Please Dont Leave Me.jpg

PONYTALE

2013

This piece was inspired by a simple moment: tying my hair into a ponytail.  

In 2013, I wrote: "My hair has been short for the last few years, but recently I have been growing it out. My shoulders, arms, hands, and fingers are significantly weaker than they were a year ago. This makes tasks like washing my hair, blow-drying, and doing something as simple as tying a ponytail much more difficult and glaringly obvious of what has left and what is leaving.”  

I recall tying my hair back with a rubber band as a child, teenager, and young adult. I never gave this simple act a second thought. It was effortless. I took it for granted.

Last month, I tied my hair for the first time in years, and it took me a frustrating five minutes to do it. My weakened shoulders make it difficult to raise my arms, and holding a bundle of hair now gives my diluted fingers a real challenge.

“This has never been hard before,” I thought. “NOT this, too…”

With a progressive condition, there’s no end, no finale, no respite. This seemingly insignificant task serves as a constant reminder of what’s to come. It’s these moments that make up a story.

Follow Kam’s wheelchair travel, mini-memoirs, art, and disability and accessibility musings on Instagram at instagram.com/kamredlawsk.

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WAVES

2013

Much of my work revolves around female figures, both adult and childlike. These figures represent different aspects of myself and manifest in various forms. When two of these figures appear in a single drawing, it serves as a commentary on the interpersonal dynamics within ourselves.

Our childlike versions of ourselves versus our more stoic adult versions. Our freer selves versus our fearful selves. Beauty and pain, humility and perspective—all these are personified in our struggles, which lie within each of us, battling for dominance and recognition. The past, present, and future coexist within us, like distant dream-like lands.

Many of my environments are inspired by recurring childhood dreams.

Follow Kam’s wheelchair travel, mini-memoirs, art, and disability and accessibility musings on Instagram at instagram.com/kamredlawsk.

KamRedlawsk_Waves.jpg

DAYDREAMING

2013

Much of my work revolves around female figures, both adult and childlike. These figures represent different aspects of myself and manifest in various forms. When two of these figures appear in a single drawing, it serves as a commentary on the interpersonal dynamics within ourselves.

Our childlike versions of ourselves versus our more stoic adult versions. Our freer selves versus our fearful selves. Beauty and pain, humility and perspective—all these are personified in our struggles, which lie within each of us, battling for dominance and recognition. The past, present, and future coexist within us, like distant dream-like lands.

Many of my environments are inspired by recurring childhood dreams.

Follow Kam’s wheelchair travel, mini-memoirs, art, and disability and accessibility musings on Instagram at instagram.com/kamredlawsk.

KamRedlawsk_Daydreaming.jpg

DESERT BOUND and CHAINED

2012

Much of my work revolves around female figures, both adult and childlike. These figures represent different aspects of myself and manifest in various forms. When two of these figures appear in a single drawing, it serves as a commentary on the interpersonal dynamics within ourselves.

Our childlike versions of ourselves versus our more stoic adult versions. Our freer selves versus our fearful selves. Beauty and pain, humility and perspective—all these are personified in our struggles, which lie within each of us, battling for dominance and recognition. The past, present, and future coexist within us, like distant dream-like lands.

Many of my environments are inspired by recurring childhood dreams.

Follow Kam’s wheelchair travel, mini-memoirs, art, and disability and accessibility musings on Instagram at instagram.com/kamredlawsk.

KamRedlawsk_Desert Bound.jpg

SIGNS

2012

One weekend, while exploring, I noticed a row of street signs and couldn’t help but wonder if they were somehow communicating with me. 

Follow Kam’s wheelchair travel, mini-memoirs, art, and disability and accessibility musings on Instagram at instagram.com/kamredlawsk.

KamRedlawsk_Signs.jpg

She’s Got Legs

2011

Society imposes its own standards of beauty and behavior on women, limiting their expression and potential. However, there are numerous ways to be a woman, and most of these don’t depend on physical appearance.

Follow Kam’s wheelchair travel, mini-memoirs, art, and disability and accessibility musings on Instagram at instagram.com/kamredlawsk.

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Better Days Ahead

2017

I love window light and its endless patterns. They are so simple yet graphic and descriptive, telling a story of their travels—where they have been and where they are headed. 

Window light seeping through blinds always evokes solitude, loneliness, and contemplation. It reminds me of those days when you don’t want to get out of bed, preferring to let the strips of light caress your body, bending to your will rather than you bending to it. Warm enough to soothe your face, as if those strips offer a connection to the outside world, yet hidden enough to maintain a sense of isolation, preventing anyone from seeing you. We all have bad days—today, tomorrow, or in the future—when the things we struggle with, such as diseases, disabilities, depression, death, loss, relationships, or life’s obstacles, seem to taunt us with little hope. In these moments, I turn my gaze towards the warm Ray-Bans and whisper to myself, “Better days are ahead.”

Follow Kam’s wheelchair travel, mini-memoirs, art, and disability and accessibility musings on Instagram at instagram.com/kamredlawsk.

KamRedlawsk_Better Days Ahead.jpg

WHAT'S EVERYONE STARING AT?

2012

KoreAm Column / July 08, 2014

When I was young, I hated being different. Like most adolescent girls, struggling with identity and the awkwardness of puberty, I didn’t exactly exude confidence. I certainly never wanted to stand out, preferring instead to blend in with the crowd. Of course, the problem was that, while I aspired to be like my white classmates in my small-town Michigan school—especially the pretty, popular ones—my Asian face certainly didn’t help me blend in with them.

Little did I realize back then that being different would only extend into my adulthood and intensify times 100, as a result of my disability, a rare muscle-wasting disease. My condition has forced me not only to deal with the physical complications of accomplishing previously simple tasks, but also to truly learn about myself, know myself and accept my different-ness. I need to project a strong self-confidence, after all, in order to face a world that is often harsh toward people with disabilities.

There is no manual for this, but what helps me is that I don’t see myself the way those people see me. I obviously feel the disability and the daily struggle, but I don’t feel like I am “abnormal, defective or damaged goods”—the types of things I feel projected through many strangers’ stares and whispers when they see me in my wheelchair.

I do believe the way you hold yourself as a person is the way others will treat you. However, the negative perception associated with disability is still there. And, even as I try to guard myself against the stares, the comments, the pity, they aren’t totally lost on me, especially when I hear, “What’s wrong with you?” or “What happened to you?” from some random stranger who has spent mere seconds with me. Such questioning feels like bullets from a firing squad, wounding me with the inference that I’m broken, not a contribution to society, void of talents and value that go beyond my physical attributes.

My response depends on how I’m feeling that particular day. Sometimes, I’ll use the situation to enlighten and educate the ignorant stranger. I actually don’t mind talking about my disability at all. But on bad days, I can’t be bothered and may reply, “What do you mean?” or “Nothing. What’s wrong with you?” And on very bad days, when I may have just experienced a fall or another milestone in the progression of my disease, something like “What’s wrong with you?” may trigger tears. The insensitive inquisitor may not realize he or she has jolted me back to the reality that, yes, I truly am different. And not only that, in my case, that different-ness has given me a very difficult present and future.

Most of the time, people are well-intentioned, but when they encounter something or someone different, they might feel uncomfortable, maybe even fearful, and don’t quite know how to react. It’s like we have the knee-jerk reaction to embrace sameness and to fear what we consider “not normal.” But, you know what? Being different is good; being different does not equal not enough—and this goes for not only disabled individuals.

My husband often likes to point out that my entire life story—from my adoptee background, to my career path of car design major to toy designer to later an illustrator, writer and patient advocate with a rare, one-in-a-million disease (not to mention my red hair)—and who I am are anything but “normal.”

And, actually, that is one of the great things about this journey I am on. However difficult this condition is, stripping me of choices and the life I wanted for myself, sometimes bringing me to a crying mess because I can’t do the things I used to, I can still say that I love that I am unique. It has taught me so much, and I have never been as confident as I am today. Uncomfortable can be a good thing. In fact, I say, the more you can put yourself into uncomfortable situations, the better.

To those who ask, “What’s wrong with you?” I answer, “There is nothing wrong with me. I’m just fine.”

Read the 2012 blog post for this piece

Follow Kam’s wheelchair travel, mini-memoirs, art, and disability and accessibility musings on Instagram at instagram.com/kamredlawsk.

KamRedlawsk_WhatsEveryoneStaringat.jpg

ONEIROS and I

2012

Oneiros, the monster lurking in the trees, is the GNEM monster that follows me. It's a part of me. A part I don't want, nor invited, nor created, but a part of me, nonetheless.

He knows not what he does, only that he has to be with me. He hides and lingering. I sense him. My apathy for him saddens him. This is what he was designed for.

He grieves and ponders my desire to escape him. 

GNEM is Oneiros. Like an innocent child, he has real feelings, a real purpose, and a real attachment to me. Sometimes he does wonderful things for me, and other times I want to be left alone. I'm waiting for him to leave. He is a constant reminder of my past, present, and future.

It’s a part of myself that I have no control over. It’s a double-edged sword, creating gray areas of emotions. I can’t be angry at something that has brought about such a perspective, but perspective can sometimes be painful. There’s no escape from it. It’s a process of working with this shadow. And so, in my mind, I’ve personified him, an entity with real emotions, pain, and hurt. 

So here we are, in a relationship. Within each of us lies an Oneiros.

Read blog post for this piece

Follow Kam’s wheelchair travel, mini-memoirs, art, and disability and accessibility musings on Instagram at instagram.com/kamredlawsk.

Animation: Eben McCue

How It Feels I

2018

This drawing tells the tale of nerve pain. How it feels. I’ve been grappling with mysterious and progressively worsening chronic symptoms that aren’t related to my GNE Myopathy. GNEM is a rare genetic muscle-wasting disorder that I’ve lived with for nearly two decades.

Over the past few years, I’ve embarked on an arduous diagnosis journey with numerous specialists, yet they’ve been unable to provide any answers. This experience has opened my awareness to a different realm of disability, known as ‘invisible illness’ or ‘chronic illness.’ This form of disability is characterized by an ever-growing condition but remains largely misunderstood by the public and the medical community.

Statistics reveal that approximately 1 in 2 individuals (133 million) are affected by chronic conditions. These conditions encompass a diverse range of illnesses, including autoimmune diseases such as rheumatoid arthritis and lupus, fibromyalgia, Crohn’s disease, Lyme disease, complex regional pain syndrome (CRPS), chronic fatigue syndrome (CFS), lupus, multiple sclerosis (MS), Ehlers-Danlos syndrome, cancer, and mental health conditions like depression and anxiety. Common symptoms associated with these chronic conditions include persistent pain, nerve pain, migraines, chronic itching, fatigue, cognitive impairment, and mood disorders. 

Those with illnesses and disabilities who deal with chronic pain regularly are often overlooked, forcing us to be my own advocate, just like my long and tumultuous journey for a diagnosis of GNE Myopathy. I’ve seen many doctors for my growing chronic symptoms, including nerve pain, chronic pain, and unrelenting itching, but many have been willing to investigate the cause and instead prescribe painkillers. I’m dissatisfied with this lack of collaboration among specialists and a focus on pain management rather than diagnosis. I’ve gained valuable insights and have much to share about the medical and drug industry, but it’s too extensive for a single post.

Follow Kam’s wheelchair travel, mini-memoirs, art, and disability and accessibility musings on Instagram at instagram.com/kamredlawsk.

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How It Feels II

2018

This drawing tells the tale of chronic pain and its emotional impact. How it Feels. During intense episodes, it feels like a suffocating blanket enveloping me, as if I’m covered in bruises. Chronic illness is not only physically painful but also emotionally exhausting.

One of the primary complaints from individuals with invisible illnesses is that no one believes them because they appear healthy due to symptoms that are invisible and can only be experienced. The typical response is, “But you look so good.” These individuals are frequently accused of faking or imagining their disabilities, but it’s impossible to visually assess whether someone is privately suffering from an invisible illness. 


This experience and lack of public

understanding have sparked a desire to open up about this new health issue and draw upon it along with illustrating moments related to my genetic muscle-wasting condition.

Physical health issues, such as uncontrollable chronic pain and other chronic symptoms, often lead to suicide. Statistics indicate that these factors are significant contributors to up to 70% of suicides. Additionally, the divorce rate among chronically ill individuals is significantly higher than the general population, exceeding 75%. Pain. Everywhere.

Follow Kam’s wheelchair travel, mini-memoirs, art, and disability and accessibility musings on Instagram at instagram.com/kamredlawsk.

KamRedlawsk_How It Feels II.jpg

How It Feels III

2018

My body feels like an oppressive pile of bricks, and I often describe it as if I’m dragging around a corpse. As I progress, the weight increases, and my limbs feel lifeless. I frequently imagine a hill shaped like my body with gravestones on top. Between the weakness and the pain, I feel like a perished blob. Despite being young, my body feels as if it has lived 90 years. It’s weary and aged. Fragile and broke. And yet my soul feels like the vibrance of woman in her 20s. This constant contradiction is a challenge I try to balance.

Over the years, I’ve learned to befriend my body, for it’s not her fault that this is happening. We share the same emotions; she weeps when I do.

Follow Kam’s wheelchair travel, mini-memoirs, art, and disability and accessibility musings on Instagram at instagram.com/kamredlawsk.

KamRedlawsk_How Its Feels III.jpg

THE GIFT

2012

Perpetual State of Searching

KoreAm Column / May 26, 2015

While genes alone aren’t the only building blocks to a person’s life narrative, they are a pretty good start, as they mark the beginnings to our story. Like so many other adoptees, my genetic history lives behind a closed door I have not yet been given a key to.

When I see children with their birth parents, or scroll through Facebook and see updates about new births, I can’t help but feel deeply enthralled by the idea of sheer physical resemblance of child to parent.

It to me feels almost magical, for it’s a biological link I never had the opportunity to experience or may ever experience.

As a 36-year-old adult, I, too, have a past. Except this past takes place in white suburbia with Midwestern elements: a large, church-going family; a father who liked to fix cars while listening to oldies music; fishing; baseball; youth soccer; pasta and potato salad; and a grandma who baked homemade pies. And yet, while I treasure the memories of my traditional American upbringing, I know this is not the only place I come from.

As a child new to America, I might as well have not had a past. For my adoptive family, my life “began” when I was 4 years old. Although I remembered how confusing it felt to be taken away from South Korea and my foster mom, the memories of my native land quickly dissipated. Most of us, of course, forget our early years, but most people also have a collection of people who can tell them what they were like during their earliest years. That’s not the case for me.

I have made casual efforts to connect with my blood family in Korea, such as traveling to Korea during college and returning with my Korean adoptee husband five years later to visit Daegu, the place of my birth. While I have visited my orphanage and met my foster mom, my search for birth family has always turned up empty.

Recently, through Korean adoptee Facebook pages, I learned about 23andMe, a genetic testing service that helps people explore their ancestry and family history. My husband and I each took the 23andMe test, and three weeks later, received an ancestry composition and a list of blood relatives. So far, I have had the chance to exchange emails with and even Skype with a couple of my fourth cousins in Korea.

A common thread I’ve noticed among the community of adoptees who belong to either the 23andMe or Korean adoptee Facebook group is that everyone seems to be searching for something, whether it’s themselves, family, or anything that can help clarify their identity.

Some adoptees become strong advocates for Korean adoptees, in terms of getting their voices heard. Some are searching for a connection, a bond that someone understands them. Others are trying to free themselves out from under the rubble of trauma and identity confusion. Then, there are adoptees like myself, who don’t harbor much anger or sadness about the past, but nonetheless have a curiosity about it.

While I’ve never struggled to feel a sense of belonging growing up, I can’t deny there has always been a thread of loneliness present throughout my entire life. Thus, I am in a perpetual state of searching. I may not find what I am looking for, but at least I know something is always waiting to be found.

Read blog post for this piece

Follow Kam’s wheelchair travel, mini-memoirs, art, and disability and accessibility musings on Instagram at instagram.com/kamredlawsk.

KamRedlawsk_TheGift.jpg

Self Doubt

2018

Self-doubt is a universal human experience. The phantom of our insecurities imposes its will upon us. As an artist, designer, and a disabled person navigating a non disabled world, I am constantly confronted with self-doubt.

Follow Kam’s wheelchair travel, mini-memoirs, art, and disability and accessibility musings on Instagram at instagram.com/kamredlawsk.

KamRedlawsk_SelfDoubt.jpg

MONSTER on MY ANKLES

2012

In 2012, I was still using a cane and leg braces. I wrote, “You know those small floor or door ledges? This drawing was inspired by that.”  

My home has small molded ledges in each doorway. Any slight rise or lift poses a challenge for me. I have to pause, take a moment to think clearly, and carefully guide my legs and feet over the quarter-inch lift.  

My entire being is dedicated to this moment. Sometimes, I can achieve this in a single attempt, while at other times, it takes several tries. This calculation occurs while wearing leg braces. However, if I am not wearing any braces or shoes, it becomes significantly more challenging, if not impossible.

One day I was stuck in the doorway, having difficulty lifting my foot over this silly rise. If you were watching me, it is almost comical. How can something so little give me such a problem?  As I stood in the doorway, trying to will my legs, I imagined that perhaps a creature or monster of some sort was preventing me from victory.  

“Darn monster grabbed my ankle and refused to release its grip…every time!” I thought.

Perhaps it’s angry with me. Perhaps it wants to be near me and has a crush on me. Perhaps it has something to tell me. I’m not sure what it is, but whatever it is, it makes everything so much more difficult than it needs to be.

Suddenly I break free from its grasp and walk towards the light.

Read blog post for this piece

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KamRedlawsk_Monster on my Ankles.jpg

ORPHAN DREAMLAND

2012

*I drew this piece for What We Knew When We Were Small exhibit.

In 2012 I wrote: "When I was young, I had several recurring and continuous dreams— sometimes building upon itself with each dream. This was one of them. In the dream, I am watching over a deserted land surrounding an old shelter or war tower on stilts. My point of view is flying and zooming in towards this shack, while passing large insect-like plants coming out of the ground. As I approach the tower door, I see a little girl in a white dress sitting alone in a darkened corner...waiting. I sensed the scene represented my orphanage, and the little girl in the white dress must be me. A land of abandonment.”

I didn't make this connection until I began drawing out parts of my life, and the prominent figure that seemed to consistently appear in my drawings were child-like versions of myself wearing white dresses.

Follow Kam’s wheelchair travel, mini-memoirs, art, and disability and accessibility musings on Instagram at instagram.com/kamredlawsk.

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MONSTER BELLY

2012

I was starving the other day, and this is what I saw and how it spoke with me. Imagine how frightening it would be if this happened every time you felt hungry. On the other hand, it could also be intriguing.

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KamRedlawsk_Monster Belly.jpg

LIKE THEM

2012

A combination of something I saw, felt and parts of a recurring childhood dream.

One afternoon at a traffic light I looked up and saw a flock of birds sitting on a telephone line. The day was overcast and those birds felt ominous. I felt like they peered down at us, watching us before they in unison flew into the sky and disappeared. I thought "freedom". And I wanted to be like them. 

Follow Kam’s wheelchair travel, mini-memoirs, art, and disability and accessibility musings on Instagram at instagram.com/kamredlawsk.

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TRAVELING ORPHAN

2012

Before I became Kam, I was Young-eun. Here I am waiting at my orphanage in South Korea, not understanding the journey I was about to embark on.

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Read blog post for this piece

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PIPPI LOVE

2012

My beloved Pippi, she’s always there for me.

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KamRedlawsk_Pippi Love.jpg

Healing Nature

2018

Wheel Girl Healing Nature Handpainted shovel for Ron Finley Projects’ “Urban Weaponry” art installation. Featured in Finley’s 2024 Hammer Museum Breath(e) exhibit.

Read 2018 “Ron Finley - Choose Your Weapon” here.

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Flower Power

Journal entry, October 16, 2020

Drawing is getting so hard. Every line is effort and pain. Jason watches me and thinks it’s incredible that I can still draw because I can barely grip the pen. It’s pretty much a balancing act between my fingers and dragging my arm around the screen.

My arm is like a dead corpse, an unwillingly participant doing its best to execute my wishes. My fingers are so weak. I’m losing dexterity and my shoulders’ range of motion is laughable. Progressive muscle deterioration diseases are no joke. I’m still in the game and fighting, though.

November 2021:

The above is still true but worse. Though the loss is many times difficult, being disabled is the most natural thing about being human. It sounds pessimistic to say we’re literally dying since birth, but we are. We’re born, we die, and in between we do our best to live, collaborate, and understand humanity the best we can. Including, connecting, and exploring the most natural essence of our human existence: our emotions and how they transform through the passage of time.

If something touches us, opening a bloom of emotion, it’s important to let it happen and express itself because when we don’t, we disguise ourselves; creating a dead garden of flowers that never came to be. #kamdraws

October 2023 “What is Vulnerability?” Blog post:

What is vulnerability and why is it scary?

Vulnerability comes from Latin vulnus, meaning “wound”. It is the quality of being harmed or the willingness to be hurt.

No one wants to get hurt, and most don’t want to risk further pain by exposing their wounds or perceived weaknesses. This is self-preservation mixed with societal folklore — being vulnerable equals weakness and should be shamed.

A great equalizer between humankind is that in the end we all want connection, which is the point of vulnerability, but there are a list of fears and what-ifs that accompany this act— preventing connection across differences and antiquity.

Historically, vulnerability has been seen as a weakness, and as a terrible reaction to this, we were taught that force equals strength—in which we’ve wandered throughout time, forcing our way via wars and hatred instead of understanding. But force to avoid vulnerability is a facade; a denial of one’s own humanity.

When you’re disabled, vulnerability inevitably surrounds your every move (or lack thereof). You're vulnerable in ways most people don’t have to think of, and if you require a lot of assistance like me, vulnerability comes without a choice or modesty—from required help with all bathroom exchanges to getting dressed to needing help with every single daily act.

When you’re disabled, you worry about your safety while dating or lying in bed at night.

When you’re disabled, you're financially vulnerable because daily living is more expensive, but you’re also a part of the most unemployed minority group.

When you’re disabled, you’re vulnerable under constant medical analysis, as if your body is not your own and more like an anonymous specimen for sterile eyes to gawk at.

When you’re disabled, the world sees your vulnerabilities upfront, or there’s great effort in hiding them—forced to be vulnerable and in need within exchanges. This can be crushing to independent spirits, but it has good takeaways too.

Disability has taught me much about vulnerability—not just physically and existentially but also emotionally—a cornerstone of my advocacy.

I want understanding, not through force, so I’m willing to be open in spite of potential hurt.

As a little orphan new to America and a family, I had a lot of trouble being vulnerable and openly sharing how I felt. My mother would have hours-long talks with me, trying to get me to open up.

'Say something', she'd say.

But I was afraid. I still am. I was an orphan shipped to a new world with so many fears. I was closed.

My convictions always push me to be open for a greater reason and understanding. Today, I'm more afraid of what will happen if I don't share. If I'm not vulnerable.

Vulnerability is scary and difficult. You are exposed in the silent, loud dropping of a facade for all eyes or none to see— the garb we've been taught we need to have in order to assimilate. In order to hide. In order to not be ourselves.

Vulnerability is necessary. It's a feature of our human condition. To be vulnerable is to be human. To be vulnerable, to be empathetic to another's pain (even when it's the enemy), is necessary for human survival - otherwise, it's us we should be afraid of, for without any sense of vulnerability, humans would only act out in despicable outbursts and constant wars—killing each other off with force, void of reason or compassionate interludes.

Disabled or not, we are all vulnerable at any single moment in time. We can die in an instant through an accident or sudden disease, but we'd prefer to pretend we have control over our wounds because if we didn't do this, it would mean admitting our immortality, and this is uncomfortable.

Hiding our vulnerabilities doesn't just throttle connection and understanding with each other, but also with oneself. No matter how we try, there is no hiding of our wounds, only displacement and tantrum-like roarings. Much like a raging war, the lack of vulnerability with oneself causes internal and external destruction, but also the inability to truly connect thus live.

Don't be scared of being vulnerable. Don't be afraid to live. And even if you are scared, be more afraid of not truly living.

Follow Kam’s wheelchair travel, mini-memoirs, art, and disability and accessibility musings on Instagram at instagram.com/kamredlawsk.

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Torn

2018

A tale of rapture experienced by individuals with chronic illnesses, such as chronic pain or nerve pain.

November 2023 “What is Pain?” Blog post: 

I've become afraid of my body. I appreciate her and all she has carried us through, but I'm still afraid. I'm afraid of new treacherous body tales, new pain, and an uncertain future. I'm afraid of its fragility. I'm afraid of the inevitable.

I drew 'Torn' in response to a series of mysterious chronic conditions seemingly unrelated to my muscle-wasting condition. Some of the pain is from a body that is breaking down, but since 2016 I became enraptured in chronic illness and new diagnoses’ journeys.

What is Pain?

Pain is a way of being in the world; a way of being one with existence and detached at the same time.

Pain is a privilege of the living, an aperture of death.

Pain is an agonizing affliction.

Aching pain. Silent pain.

Physical pain. Emotional pain.

Can anyone hear me? Pain.

Please, leave me, pain.

Why are you here? pain.

Can I make it through? Pain.

Pain that has no silver lining. No smile to contain. No positivity to quench.

Pain that obfuscates any possibility of light at the end of the tunnel.

Pain that combats itself through intimate touch; a natural painkiller, a blurred dichotomy between aching and pleasure.

Pain is an intoxicating tonic with the ability to remove oneself from its own skin, compromising oneself with its lure, many times disguised as rage or hopelessness.

Pain has become a part of this body decided upon since the genetic union of my biological parents. After years of searching for answers and pleading for allies, I learned my condition was globally ultra-rare and untreatable, one day leading me to complete immobility—top to bottom. But one can't truly understand what a prognosis means until they've traveled through it.

At diagnosis, no one tells you there will be a list of progressive residual side effects to cellophane-wrap your entire life, including chronic pain. No one tells you about the pain: an exhausting daily routine. I live in it, around it, and beneath it every day. There is no choice.

My relationship with my body is one of duality. I'm afraid of my body, its ability to reverberate pain emotionally and physically, but I’m also in awe of its ability to endure. Yet still. The physical fragility is what frightens me. Everything is painful. Everything. My body is always screaming, I AM IN PAIN, in the smallest and most unforeseen ways.

My neck has become a floppy rod of pain I can't count on. My fingers now tire solely from tapping on my phone screen. The sudden trouble with breathing, the scary spontaneous choking episodes with no witnesses to save me. Seeing others like me with breathing machines, tracheotomy recommendations, bedridden or gone from the by-product of a muscle-wasting disease, all things I was told weren't side effects of this condition in its early days of understanding.

There are days I just can’t, and I don't. I'm so sad. I'm so lost in the pain. Other days, I assimilate — accepting its existence and a part of my days forevermore.

There is a frustration with not having a choice, which can trail to humility. How dare we think we get to have a choice?

Our pain doesn't always have to have an inspiring ending or interlude or lesson to learn. We don't have to compare it for perspective. It doesn't have to benefit others or be something we attach meaning to or thread a purposeful tale or positive arc. There doesn't have to be perspective when darkness is eclipsing you. It just exists. It hurts to hurt. And that is enough right there.

To all those hurting right now, physically or emotionally, I think of you. I love you. #kamdraws #kamwrites #kamswheelstravel

Follow Kam’s wheelchair travel, mini-memoirs, art, and disability and accessibility musings on Instagram at instagram.com/kamredlawsk.

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Paradise

2020

Wheelchair Girl in nature’s paradise.

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Paradise
Paradise

Bathing Woman

2018

This story delves into my imaginary life that encroaches on my everyday existence, exploring how these two worlds intersect. Occasionally, I experience waking dreams where reality blurs, leaving me indecipherable between the two. This surreal encounter occurred while I was in the bathtub. Vines started growing around me as water slowly seeped out, exposing me. I frequently rely on my imagination to comprehend the unfolding events.

Follow Kam’s wheelchair travel, mini-memoirs, art, and disability and accessibility musings on Instagram at instagram.com/kamredlawsk.

KamRedlawsk_Bathing Woman.jpg

Sexability

2014

When You Have A Disability, What Happens To Your Sex Life?

KoreAm Column / July, 8, 2014

When a completely life-altering event happens, like a car accident that leaves you paraplegic or, in my case, an extremely rare muscle deterioration disease sets in at the age of 20, you might possibly think that, because you’re in a wheelchair or disabled, your life is over. Not true. While there are many things you may no longer be able to do, much of it is a matter of reinventing yourself.

Let me explain.

Growing up, I never saw “sexy” and “beautiful” figures offered to me in the form of a “disabled” person. This inevitably fed an initial perception of disabled persons being essentially “asexual.” Obviously, now that I am an adult with the intimate experience of being “disabled,” I know that such an idea is completely wrong.

And, yet, I have to say that, while perspectives are slowly changing, society still largely looks at disabled individuals as objects of care or somebody one is obligated to be nice to.

The disabled are often desexualized, ignored and babied, and if one happens to have a partner, then that person is deemed some kind of saint for even considering taking on the wounded—as if disabled individuals are incapable of inspiring romantic love or eroticism. A person’s physical dependence on others is automatically equated with emotional and intellectual dependence, and many can’t seem to fathom how one could even have the brain space to think about sex.

Well, I am here to say that yes, we do think about sex, and yes, we can have sex.

It’s a subject most of us love, but avoid talking about, especially when related to disability. Yet the often unspoken question in the minds of many spectators is, “How can a disabled person have sex?” I have had people ask me with furrowed brows, “How can you have sex if you can’t feel anything?” Such remarks provide insight into how some in the “able–bodied” world think, clumping all disabled persons together. But every disability experience has different dimensions and doesn’t necessarily void sensation, desire or ability.

When my body began to deteriorate, I think experiencing the juxtaposition of sex being once so much easier and free versus an added challenge only deepened the desire and appreciation. Which makes sense. When we have, we take for granted. When we don’t have, or what we have is slipping away, we appreciate more. It may sound strange, but post-disability is when I became more sexually confident. Call it getting older or a survival technique, but when you have nothing to lose, it is easier to liberate yourself from all the rules and expectations.

It’s worth remembering if you ever feel like you can’t understand the position of someone different from you, remember that we are not so far from each other. Everybody has the potential to become disabled unless death reaches him or her first. And, disabled people are still people: we have fantasies, expectations, desires and sexual frustrations — perhaps more than anyone.

Follow Kam’s wheelchair travel, mini-memoirs, art, and disability and accessibility musings on Instagram at instagram.com/kamredlawsk.

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RAVEN GIRL

2012

A full life involves experiencing both its pleasures and pain; it’s an inherent part of our natural life cycle that we can’t escape. I’ve always been fascinated by ravens and crows, and these birds symbolize birth, death, and the cyclical nature of life. Interestingly, pain can also lead to beauty, and vice versa.

Follow Kam’s wheelchair travel, mini-memoirs, art, and disability and accessibility musings on Instagram at instagram.com/kamredlawsk.

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Brace Yourself

2011

A touch of pop art, a touch of superhero meets my leg in a bondage.

Follow Kam’s wheelchair travel, mini-memoirs, art, and disability and accessibility musings on Instagram at instagram.com/kamredlawsk.

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IT'S LIKE RIDING a BIKE

2011

KoreAm Column / March 12, 2014

From birth we are meant to go through a series of milestones that exemplify growth, such as crawling, speaking, walking, running and riding a bike. I don’t really remember my first steps or first words; in fact, as someone adopted from Korea, there are very few glimmers of my life that I remember before coming to America in 1983. But one of my most memorable milestones as a child was the very first time I successfully rode a bike without training wheels.

I remember this particular day, the hue of the sky and the gentle push of the wind, as I did my best to ride a bike. I had been practicing all day in my driveway. Dusk was soon approaching, and my father had suggested we call it a day and perhaps try again another day, but I wanted to keep at it. I circled the driveway trying to stay on my bike for at least a few consecutive minutes. I kept falling and getting back up and falling again.

The falls frustrated me and yet only lent to my determination. The neighborhood was quiet—it was just me and my bike. I remember that bike vividly, with a banana seat and colored streamers hanging from the handlebars. I practiced and practiced until my body finally memorized the steps. It required balance, it required careful thought, pedaling, steering and aligning myself to the bike. And, then I did it. I began riding in consecutive circles without a single fall. Riding a bike soon became second nature.

Now, at age 34, however, these things I once knew and dearly loved have suddenly become confusing to me. I am now the confused child again, except no amount of practice will garner me a victorious lap around that driveway again. Riding a bike, along with a list of other things, is now beyond my capacity, but still fresh enough in my memory to cause me to miss it.

It is the loss of something that can trigger our true understanding and appreciation of its full beauty.

There are so many things we do throughout the day to which we never give a second thought. There are beyond miraculous things happening inside us every second of the day. The complexity of the body and its orchestrated mobility are amazing. It takes 26 muscles to smile, 62 muscles to frown, 34 muscles to move a finger and 200 muscles to take a single step. When I moved to California, I began collecting a group of adventurous guy friends who were very much into being active. They were always biking, out in nature and spontaneous types that thrived in unplanned situations. I was very drawn to this, drawn to those who truly appreciate their bodies, and it greatly influenced my perspective on how to live. Today, I’m much more adventurous and broad-thinking. I put myself into new situations, and even though I may be scared or unsure, I push myself into living life as much as possible.

Read blog post for this piece

Follow Kam’s wheelchair travel, mini-memoirs, art, and disability and accessibility musings on Instagram at instagram.com/kamredlawsk.

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STRINGS

2013

In a distant land, she possesses the extraordinary ability to control her own limbs with a mere gentle tug of her strings.

Follow Kam’s wheelchair travel, mini-memoirs, art, and disability and accessibility musings on Instagram at instagram.com/kamredlawsk.

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Toy Stories - What We Knew When We Were Small

2012 / 80’s Toyland. All my husband’s favorite childhood toys.

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Toy Stories II - What We Knew When Were Small

2012

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Gone Fishing

2012

For Christmas of 2012, I drew this illustration for my father when we realized we had no pictures of us ice fishing. Out of three boys it was me, his daughter, who was his fishing partner. We loved ice fishing together, and years later, my dad would tell me the old men at the fishing hole still asked about me every winter. I can still remember the smell of the Pure Michigan ice while perch danced for me at the end of my fishing pole and the traditional victorious hot chocolate post fishing day.

Follow Kam’s wheelchair travel, mini-memoirs, art, and disability and accessibility musings on Instagram at instagram.com/kamredlawsk.

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Me House

2010

no ceiling, no office, no bathroom to fix my body a house

my legs feel like thin sticks

i wish it were one story, but this one is three.

step, step, step

walk a walk that is measured and slow we're always together. it and i how i got here, i just don't know.

feels heavy-feels weak.

whoosh, swoosh-here comes the wind creak, creak, creak house, please don't fall.

i'm not the same as before can't cartwheel or skip down the street but still me in my very core me and it. it and i.

Follow Kam’s wheelchair travel, mini-memoirs, art, and disability and accessibility musings on Instagram at instagram.com/kamredlawsk.

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ICED

2011 (art and blog post)

Like my boots?

I drew this to explain why I am constantly cold.  Yea, yea, I'm a female and females tend to always complain how cold they are.  

Something like, "Women conserve more heat around their core organs, which means less heat circulates throughout the rest of their body"  contributes insight into why this is.

 Well, there is that plus the GNEM side effect of feeling cold despite it being 80 degrees out.

Two things I love; soup and being warm. Blankets, scalding hot baths and showers galore, bring it on, because I love it and need it.  My husband thinks I'm nuts. He's roasting and I'm freezing cold any time air hits me. Turns out I'm not a stereotype for there is an explanation.  

Now, I'm no doctor so here is my juvenile explanation. I'm sure there is more to it, but here's the idea.  GNEM patients don't have shiver factor.  Like everything, there is a purpose to every little motion in our body.  Shivering is a bodily function in response to dropped temperatures in warm blooded animals.  When the core body temperature drops, the shivering reflex triggers in order to maintain homeostasis.  Your muscles that envelope your organs begin to shake in an attempt to create warmth through its energy. Well, I don't really have that...some of it, but not all of it.  

GNEM patients are deficient in sialic acid which causes some of the muscle weakness.  Normal muscles contract, so when you work out and get hot it's because your muscles are contracting heat and generates warmth. But, GNEM patients don't have enough muscle for adequate contraction and I guess that contributes to the coldness. That less mobility.  The more I progress, the more coldness I experience. 

If you've slept next to me you would know how absolutely unbearable my feet and legs can be. It would probably feel like you are sleeping with a dead person, I can become that cold.  My feet feel like frozen blocks of ice. My calfs and legs are hard as rock and at times frozen to the bone.  I know, sexy.  I totally would use this as my dating profile.  "Cold as Ice".

If I've been sitting for too long, and cold on top of it, my legs get so swollen and hard that I can't slide off my leg braces.  At this stage in the condition I'm not used to sitting for long periods, but when I do it can be really painful due to the swelling.

My hands are also usually pretty cold, too, especially my fingers.  So, while Jason is roasting and sweating, I am frigid and cold.  

I share these things because these are little moments that contribute to understanding a condition. It's person first and then the condition. I don't share so you to feel sorry for me, feel bad, tell me how inspirational I am nor get attention, because quite frankly this type of attention is one I'd rather leave on the shelf.  

But, it's the moments, not just for MY condition but any physical or mental condition, that exemplifies a disease, and not the textbook version. When I see others, I don't really see their condition or predicament but tend to visualize their small moments first.  

Homeless.  What does it really feel like to be shivering, cold and absolutely hungry?  I visualize how the body may move when it hasn't eaten for days or weeks. How they must feel knowing they have no home to go to. How quiet their days and nights must be.  

Traveling from strong to weak is the most humility I have ever experienced. Your mortality shouts in your face.  In the same breath you're moving from weak to strong, because if you can stick with yourself, believe in yourself, and keep moving, there's a safety, a comfort, in knowing who you are. Despite the utter pain it can  cause, at least you had the experience.  The experience of knowing your mortality.  It's something we hate to accept or confront because we are invincible, right?  But, there is a beginning and there is an end.  I think, there is a comfort in understanding your mortality. Maybe we wouldn't be as arrogant, self-centered and self-important.

GNEM has definitely contributed to me opening up.

Follow Kam’s wheelchair travel, mini-memoirs, art, and disability and accessibility musings on Instagram at instagram.com/kamredlawsk.

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